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Research Datasets on Child Health Equity

http://psidonline.isr.umich.edu/CDS/researchdesign.html

The Child Development Supplement (CDS) is one research component of the PSID, a longitudinal study of a representative sample of U.S. individuals and the families in which they reside. Since 1968, the PSID has collected data on family composition changes, housing and food expenditures, marriage and fertility histories, employment, income, time spent in housework, health, consumption, wealth, pensions and savings, and philanthropic giving.

http://nces.ed.gov/ecls/

The Early Childhood Longitudinal Study (ECLS) program has been designed to include two overlapping cohorts: a Birth Cohort and a Kindergarten Cohort. The birth cohort follows a sample of children from birth through kindergarten entry. The kindergarten cohort follows a sample of children from kindergarten through the eighth grade. The ECLS Program provides national data on children's status at birth and at various points thereafter; children's transitions to nonparental care, early education programs, and school; and children's experiences and growth through the eighth grade. The ECLS program also provides data to analyze the relationships among a wide range of family, school, community, and individual variables with children's development, early learning, and performance in school.

http://www.bls.gov/nls/nlsy79ch.htm

In 1986, a separate survey of all children born to NLSY79 female respondents began, greatly expanding the breadth of child-specific information collected. In addition to all the mother's information from the NLSY79, the child survey includes assessments of each child as well as additional demographic and development information collected from either the mother or child. For children aged 10 and older, information has been collected from the children biennially since 1988 on a variety of factors including child-parent interaction, attitudes toward schooling, dating and friendship patterns, religious attendance, health, substance use, and home responsibilities. Biennially (since 1994), children ages 15 and older complete a lengthy child interview modeled on the NLSY79 questionnaire. Information collected includes their schooling, training, work experiences and expectations, health, dating, fertility and marital histories, and household composition.

http://www.bls.gov/nls/nlsy97.htm

The NLSY97 consists of a nationally representative sample of approximately 9,000 youths who were 12 to 16 years old as of December 31, 1996. Round 1 of the survey took place in 1997. In that round, both the eligible youth and one of that youth's parents received hour-long personal interviews. Youths continue to be interviewed on an annual basis.

http://www.cpc.unc.edu/projects/addhealth/design

Add Health is a school-based, longitudinal study of the health-related behaviors of adolescents and their outcomes in young adulthood. Add Health postulates that families, friends, schools, and communities play roles in the lives of adolescents that may encourage healthy choices or may lead to unhealthy, self-destructive behavior. Data to support or refute this theory are collected from students, parents, school administrators, and others.

http://www.meps.ahrq.gov/mepsweb/index.jsp

The Medical Expenditure Panel Survey (MEPS) is a set of large-scale surveys of families and individuals, their medical providers, and employers across the United States. MEPS is the most complete source of data on the cost and use of health care and health insurance coverage.

http://www.cdc.gov/nchs/about/major/slaits/nsch.htm

This survey, sponsored by the Maternal and Child Health Bureau of the Health Resources and Services Administration, examines the physical and emotional health of children ages 0-17 years of age.  Special emphasis is placed on factors that may relate to well-being of children, including medical homes, family interactions, parental health, school and after-school experiences, and safe neighborhoods.

http://www.cdc.gov/nchs/nhanes.htm

The NHANES program began in the early 1960’s and has been conducted as a series of surveys focusing on different population groups or health topics. In 1999, the survey became a continuous program that will have a changing focus on a variety of health and nutrition measurements to meet emerging needs. The survey examines a nationally representative sample of about 5,000 persons each year. These persons are located in counties across the country, 15 of which are visited each year. The NHANES detailed interview includes demographic, socioeconomic, dietary, and health-related questions. The examination component consists of medical and dental examinations, physiological measurements, and laboratory tests administered by highly trained medical personnel.

http://www.cdc.gov/nchs/nhis.htm

The National Health Interview Survey (NHIS) is the principal source of information on the health of the civilian noninstitutionalized population of the United States and is one of the major data collection programs of the National Center for Health Statistics (NCHS).  The households selected for interview each week in the NHIS are a probability sample representative of the target population. With four sample panels, NHIS data are collected annually from approximately 43,000 households including about 106,000 persons.

http://www.fragilefamilies.princeton.edu/

The Fragile Families and Child Wellbeing Study is following a cohort of nearly 5,000 children born in large U.S. cities between 1998 and 2000 (roughly three-quarters of whom were born to unmarried parents). We refer to unmarried parents and their children as “fragile families” to underscore that they are families and that they are at greater risk of breaking up and living in poverty than more traditional families.  The Study consists of interviews with both mothers and fathers at birth and again when children are ages one, three and five, plus in-home assessments of children and their home environments at ages three and five. The parent interviews collect information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. The in-home interview collects information on children’s cognitive and emotional development, health, and home environment. Several collaborative studies provide additional information on parents’ medical, employment and incarceration histories, religion, child care and early childhood education. The Fragile Families and Child Wellbeing in Middle Childhood Study recently received a $17 million grant from the National Institute of Child Health and Development (NICHD) to field a nine-year follow-up. This project combines the core telephone surveys, in-home study, and teacher surveys into one larger project. Data collection will begin in 2007 and continue through 2009.

Society for Equity in Child Health
Jeffrey Goldhagen, MD,  President
555 Bishopgate Lane   ©   Jacksonville, FL 32204
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